Welcome to our events page! Please see below for information on all of our upcoming events. Other exciting programs and workshops are on their way, so please check back often!
SLEEP 2016 (June 11 - 15)
A joint meeting of the American Academy of Sleep Medicine and the Sleep Research Society
On Saturday, June 11th, at this year's AASM Conference (SLEEP 2016) in Denver, Colorado, Dr. Ipsiroglu will be presenting as part of a ‘Pediatric Sleep Medicine Course'. Please click here to view the handout for Dr. Ipsiroglu’s presentation.
SLEEP is the premier World forum to present and discuss the latest developments in clinical sleep medicine and sleep and circadian science. The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep and circadian research, promotes the translation of basic science into clinical practice and fosters the future of the field by providing career development opportunities at all levels.
When: Saturday June 14, 2014; 9am-3pm
Where: Chan Theatre, Child & Family Research Institute, BC Children's Hospital, 938 West 28th, Vancouver
The Down Syndrome Research Foundation, the Children's Sleep Network, and the Treatable Intellectual Disability Endeavor in BC are pleased to present Dr. George Capone for an important one day event for families, supporters, clinicians and researchers with an interest in learning more about Down Syndrome. The event is co-sponsored by NeuroDevNet.
Dr. George Capone is the Director of the Down Syndrome Clinic and Research Center at Kennedy Krieger Institute. He is an Associate Professor of Pediatrics at Johns Hopkins School of Medicine and conducts collaborative and ongoing research in the areas of neuroimaging, neurobehavioral phenotypes, mood disorders, sleep disorders, pharmacologic management and clinical trials. He serves on the Board of Directors of the National DS Congress, the Clinical & Scientific Advisory Boards of the National DS Society, the NIH-NICHD DS Consortium, and is a member and a founding director of the Down Syndrome Medical Interest Group. A graduate of Wesleyan College and University of Connecticut Medical School, Dr. Capone completed his residency and fellowship at Cincinnati Children's Hospital and another fellowship at Johns Hopkins University School of Medicine.
During his presentation, Dr. Capone will discuss:
- The role of key genes triplicated on chromosome 21, and the impact of these genes on brain development
- Updates to the American Academy of Pediatrics health care guidelines, and implications for medical screening across the lifespan
- New research on child and adult behavior, and the connection to mental health
- Basis for identifying and prioritizing targets for biomedical intervention in terms of promoting/enhancing cognitive development and preventing cognitive decline
You won't want to miss this informative seminar with Dr. Capone, a foremost expert in the field of Down Syndrome. You are also invited to attend the roundtable discussion "Take Home Message for Clinical Practice" immediately following this event.
Click here for the summary of the event.
Two Sleep2Treat Events Featuring Beth Ann Malow, M.D. (Professor of Neurology and Director of Vanderbilt University's Sleep Division)
Friday, June 20, 2014; 8:30am - 4:30pm
Solving Sleep Problems in Children with ASD - a workshop for parents and community professionals
Saturday, June 21, 2014; 9:00am - 12:30pm
Phenotyping Sleep/Wake Behaviours in Children with ASD - a research seminar moderated by Dr. Osman Ipsiroglu (Sleep/Wake Behaviour Clinic, B.C. Children's Hospital)
The Speaker - Beth Ann Malow, M.D.
Dr. Beth Ann Malow is the Burry Chair in Cognitive Childhood Development, Professor of Neurology and Pediatrics, and Director of Vanderbilt University's Sleep Division. Dr. Malow is the co-author of Solving Sleep Problems in Children with Autism Spectrum Disorders - a Guide for Frazzled Parents, available this summer. A parent of two children with ASD, she has great compassion for parents and a deep understanding of the practical techniques that parents can use to improve attention and behaviour and lessen anxiety through better sleep.
About the Friday, June 20th Workshop at SFU Downtown
Many parents assume that nothing can be done about their nightly struggle to help their child with ASD go to sleep and stay asleep throughout the night. However, research is demonstrating that although common, poor sleep in children with ASD can be tackled effectively and that parent training is key to success. A good night's sleep is fundamental to all children being able to learn and for their parents to function, and this event is relevant to both professionals and parents who are looking for practical steps that parents can take to reap the benefits of improved family health and quality of life. While developed specific to autism, many of the strategies that Dr. Malow will describe are relevant to children with a range of special needs. There will be plenty of opportunities to ask questions.
About the Saturday, June 21st Research Seminar at BC Children's Hospital
Phenotyping Sleep/Wake Behaviours in Children with Autism is a research seminar with Dr. Beth Malow, moderated by Dr. Osman Ipsiroglu. There is no cost to attend this half-day research seminar, but there are very limited seats.
For more information, click here for the summary of the event.
The Speaker: Dr. David Champion (Pain Research Unit, Sydney Children's Hospital)
When: Wednesday, June 25th, 2014; 7:00am - 8:00am
Where: UBC Faculty of Medicine - SHY Building (D308 - SHY Auditorium)
The presentation was recorded via webinar and will be available for viewing once speaker permission has been received.
Hosted by Dr. Osman Ipsiroglu (Sleep/Wake Behaviour Clinic, BC Children's Hospital) and Dr. Gill Lauder (Acute Pain Service)
What is this event? A meeting for parents, professionals, and community change-makers as a next step in an initiative to provide "better nights, better days, and less medication" for children and adults with neurodevelopmental disorders, including Down syndrome.
Why is this event taking place? The goal for this Sleep Summit is to develop a position paper that outlines the problem as well as a practical strategy for moving forward. The research evidence, pointing to poor developmental outcomes and cognitive decline for people with Down syndrome who have untreated sleep apnea, continues to mount.
Who is attending? Parents and healthcare professionals - including respirologists, respiratory technicians, and medical ethicists who are generously giving their time to assist with this important initiative.
Where is the Sleep Summit taking place? The meeting will be held at the Down Syndrome Research Foundation, 1409 Sperling Avenue, Burnaby.
When does it start? Thursday, June 11th from 1:00 to 4:00, and on Friday, June 12th from 9:00 to 3:00.
How do you register? Official registration is currently closed. For inquiries regarding late registration, please email Dawn McKenna (firstname.lastname@example.org) or Pat Hanbury (email@example.com).
For the Sleep Summit 2015 agenda, click here.
What is this event? Hackathons bring together coders, designers, developers and individuals with specialty expertise to intensively collaborate on building novel technology-based applications, such as mobile apps, to address a specific challenge. This Apps4Kids Hackathon event is a unique Hackathon focusing on medical care and education apps in collaboration with interested parent groups and professionals.
Why is this event taking place? This is a novel approach for improving chronic care in paediatrics and, if successful, may become a trans-disciplinary platform or exchange of knowledge and expertise in our university (the University of British Columbia).
Who is attending?
- Parents, service-providing non-governmental organizations and healthcare professionals - this includes clinicians, therapists, researchers, scientists, and everyone else that deals within the health field and with vulnerable populations. Bring your personal experience and the challenges you want to solve.
- Tech Developers - we need tech experts, programmers, and people who love to code.
- UI/UX and Visual Designers - we need people like you to make everything work intuitively and to create a stellar user experience. Great applications require great design.
Where is the Hackathon taking place? All hacking-related events, including pitching, brainstorming, developing and celebrating, will take place in room 2020/2030 in the Fred Kaiser Building (2332 Main Mall) at UBC. During the focus group week, the various meetings will take place at the locations of the non-governmental organizations and/or health centres; this will be discussed within your hackathon team.
When does it start? In general, the morning events will begin at 9:00am and evening events will begin at 5:00pm. Please refer to the schedule to see more specific times.
How do you register? Official registration is currently closed. For inquiries regarding late registration, please email Mai Berger at firstname.lastname@example.org
For FAQs, event schedules and additional information regarding the Apps4Kids Hackathon, please click here.